Neuromodulation Core Outcome Set for Epilepsy

What is this study about?

If you have—or care for someone with—a neuromodulation device (like RNS, VNS, DBS, or EASEE), you may notice changes that go beyond seizure control. These devices can affect mood, thinking, energy, and daily life. Most current ways of measuring treatment success focus mainly on seizure counts after surgery and don’t capture these broader experiences.

This survey asks which outcomes matter most in deciding whether treatment is successful. Your responses will help us create better ways to measure the impact of neuromodulation devices for people living with epilepsy.

Who is this study for?

If you are a person living with epilepsy, caregivers/family member of a loved one with epilepsy, or a clinician who cares for people with epilepsy, we want to hear from you.

How long does it take?

About 10-15 minutes (just enough time to do it while waiting for your coffee to brew!)